HOME
About this site
Advisors to this site
Aging
Anesthetics
Basics of CMT
Bracing
Breathing
Chatrooms
Children/youth
Dentistry
Diagnosing
Drugs/Vitamins
Exercise
Falls
Fatigue
Feet/Legs
Gastrointestinal
Genetics
Grieving
Hands/Arms
Helping Aids
HNPP
Insurance
Medical Journal Articles
Links
Nervous Systems
Pain
Poetry
Pregnancy
Profiles
Q and A
Referrals
Resources
Sex
Special Skills Dogs
Stress
Surgery
Testing/Telling
Tips for Living with CMT
Translations
Travel
Types
Vocal Cords/ Speaking/Swallowing
Websites
Wellness
Women with CMT
Work
HOME
Welcome to Holland
Dedicated to All Parents of a Child with CMT
From Carol Turkington, Family Support Institute, Canada

When you're going to have a baby, it's like you/re planning a vacation to Italy. You're all excited. You get a whole bunch of guidebooks, you learn a few phrases in Italian so you can get around, and then it comes time to pack your bags and head for the airport.

Only when you land, the stewardess says: "Welcome to Holland." You look at one another in disbelief and shock saying: "Holland? What are you talking about? I signed up for Italy!" But they explain there's been a change of plans and you've landed in Holland, and there you must stay.

"But I don't know anything about Holland! I don't want to stay," you say. But you do stay. You go out and buy new guidebooks. You learn some new phrases and you meet people you never knew existed. The important thing is that you are not in a filthy, plague-infested, slum full of pestilence and famine. You are simply in a different place than you had planned.

It's slower paced than Italy, less flashy than Italy but after you've been there a little while and you have a chance to catch your breath you begin to discover that Holland had windmills; Holland has tulips; Holland has Rembrandts.

But everyone else you know is busy coming and going from Italy. They're all bragging about what a great time they had there and for the rest of your life you will say: "Yes, that's what I had planned."

The pain of that will never, ever go away. You have to accept that pain, because the loss of that dream, the los of that plan, is a very, very significant loss. But if you spend your life mourning the fact that you didn't get to Italy, you will never be free to enjoy the very special, the very lovely things about Holland.