|
Welcome to Holland Dedicated to All Parents of a Child with CMT From Carol Turkington, Family Support Institute, Canada When you're going to have a baby, it's like you/re planning a vacation to Italy. You're all excited. You get a whole bunch of guidebooks, you learn a few phrases in Italian so you can get around, and then it comes time to pack your bags and head for the airport. Only when you land, the stewardess says: "Welcome to Holland." You look at one another in disbelief and shock saying: "Holland? What are you talking about? I signed up for Italy!" But they explain there's been a change of plans and you've landed in Holland, and there you must stay. "But I don't know anything about Holland! I don't want to stay," you say. But you do stay. You go out and buy new guidebooks. You learn some new phrases and you meet people you never knew existed. The important thing is that you are not in a filthy, plague-infested, slum full of pestilence and famine. You are simply in a different place than you had planned. It's slower paced than Italy, less flashy than Italy but after you've been there a little while and you have a chance to catch your breath you begin to discover that Holland had windmills; Holland has tulips; Holland has Rembrandts. But everyone else you know is busy coming and going from Italy. They're all bragging about what a great time they had there and for the rest of your life you will say: "Yes, that's what I had planned." The pain of that will never, ever go away. You have to accept that pain, because the loss of that dream, the los of that plan, is a very, very significant loss. But if you spend your life mourning the fact that you didn't get to Italy, you will never be free to enjoy the very special, the very lovely things about Holland.
|