Resources and Journal Articles on Breathing and CMT

Breathing Resources
The International Ventilator Users Network (IVUN) has a regular newsletter linking ventilator users with each other and with health care professionals interested in home mechanical ventilation. To join send $8 US or $10 Cdn.or overseas to: Gazette International Networking Institute, 51-- Oakland Ave. #206, St. Louis, MO 63110-1406, USA

There is an interesting publication out called Ventilators: Alternatives for Long-term and Home Use: A manual for people who are considering the long-term use of ventilator at home. A copy costs $15 plus add $5 in the US and Canada and $10 elsewhere for shipping and handling. Cheques in US funds to:
Dr. E.A. Oppenheimer
c/o Pulmonary Medicine
4950 Sunset Blvd.
Los Angeles, CA 90027-5822 USA

Journal Articles on Breathing and CMT

Carter GT. Phrenic Nerve Involvement in Charcot-Marie-Tooth. Muscle & Nerve; Letters to
the Editor 1995/p.1215

Carter GT, Kilmer DD, et al. Evaluation of Phrenic Nerve and Pulmonary Function in Hereditary Motor and Sensory Neuropathy Type I. Muscle & Nerve 1992/15:459-462

Chan CK, Loke J, et al. Bilateral Diaphragmatic Paralysis: Clinical Spectrum, Prognosis, and Diagnostic Approach, Archives of Physical Medical Rehabilitation 1988/69:976-979

Chan CK, Mohsenin V et al. Diaphragmatic Dysfunction in Siblings with Hereditary Motor and Sensory Neuropathy (Charcot-Marie-Tooth Disease). Chest 1987/91/4:567-570

Chan CK, Mohsenin V, et al. Respiratory Muscles and Respiratory Control; Diaphragmatic Dysfunction in Association with Charcot-Marie-Tooth Disease and Diabetes Mellitus. Abstracts, 52nd Annual Scientific Assembly 458S

Chan CK, Nathanson BN. Respiratory Muscle Dysfunction in Hereditary Motor and Sensory Neuropathy. Archives of Internal Medicine 1989/Vol.149:972-973

Dyck, PJ, Litchy WJ, et al. Hereditary Motor and Sensory Neuropathy with Diaphragm and Vocal Cord Paresis. Annals of Neurology 1994/Vol.35 No.5:608-615

Dyer E, Callahan AS. Charcot-Marie-Tooth Disease and Respiratory Failure. Chest 1988/ 92/1:221

Eichacker PQ, Spiro A, et al. Respiratory Muscle Dysfunction in Hereditary Motor Sensory Neuropathy, Type 1. Archives of Internal Medicine 1988/Vol.148:1739-1740

Gilchrist D, Chan CK, Deck JHN. Phrenic Involvement in Charcot-Marie-Tooth Disease - A Pathologic Documentation. Chest 1989/96:1197-99

Hirsch NP. Respiratory insufficiency in Charcot-Marie-Tooth disease. Anaesthesia 1998/ 53:1034

Laroche CM, Carroll N, et al. Diaphragm weakness in Charcot-Marie-Tooth disease. Thorax 1988/43:478-479

Misuri G, Lanini B, et al. Mechanism of CO2 Retention in Patients with Neuromuscular Disease. Chest 2000; 117:447-453

Nathanson BN, Yu DG, Chan CK. Respiratory Muscle Weakness in Charcot-Marie-Tooth Disease, A Field Study. Archives of Internal Medicine 1989/149:1389-91