Romance is still there
by S.L., U.S.A.
As a woman I find myself often frustrated by my CMT. I have made many changes in my life to accommodate this illness. Nothing can be spontaneous with a body that doesn't work. I know many of you have experienced some of these changes too. We can't just jump to our feet to answer the doorbell, first we must adjust out braces or grab our cane. When confronted by a building with steps, we wonder if it's really necessary to go in. Even at the grocery store we accommodate our illness with hands that don't want to work as we write our cheque.

So why is it that I have had such a hard time admitting that I need to change my expectations regarding sex? I have put a load of guilt on my shoulders for feeling too tired for romance. Some nights it's all I can do to drag myself into bed, with nothing on my mind but sleep. I realize that it's just another part of my life where physical and mental changes have to be made.

There is hope, however, With my husband's help, with help from Linda at CMT International (and her newsletters), and by planning ahead for romantic evenings, I feel that my sexual life is adjusting to my disability. In all honesty, I guess my expectations needed to change anyway, at 43 it's hard to be spontaneous at anything.