My time working nights in the group home will end in a couple of weeks. Due to financial problems, the home will be closed. They offered me work in another house with the same type of kids, but during the day. These are disturbed kids who need constant attention and many times physical restraints. I have said that I cannot do this. Right now the agency has nothing to offer me. I may have to go on disability. This is hard for me to accept. I do so want to be independent. But accepting that I have CMT has always been difficult for me. I think now I know my staying in the job for 15 years was a form of denial.

I am much slower and in much more pain I have found ways to get around my disability on the job but it was getting harder. My hands are saying no, this cannot continue. They are sore now from writing. I have to investigate computers, but typing is also painful.

I noticed Dr. Patterson's article in the newsletter. I found him very helpful at the conventions. Is it possible to see him about my hands? I don't have a specialist as I needed a rest from those who pretended to take an interest and then became antagonistic when they hit a wall. I'm still looking for someone to work with me on my lower limbs but I'll no longer put up with abusive doctors.

Linda here - Why not give yourself a breather, consider yourself on disability but between jobs. If something comes along that feels right and you are well…go for it.