Here are some contacts worldwide who publish information on CMT in the form of a newsletter or magazine and have a web site and/or e-mail. We've tried to verify everything, including the web sites, as carefully as possible but things change fast on the Internet.

U.S.A. - newsletter/ web site/ chatline/ videos/books /
CMT Association
2700 Chestnut Parkway
Chester, PA 19013
U.S.A.
tel: 1-800-606-CMTA
e-mail: CMTAssoc@aol.com
www.charcot-marie-tooth.org

QUEST magazine (MDA of USA)
Muscular Dystrophy Association Inc.
3300 East Sunset Drive
Tucson AZ 85718-3208
tel: (520) 529-2000
e-mail publications @mdausa.org
Available on the Internet at www.mdausa.org

Canada - newsletter/support/etc./ in English
Muscular Dystrophy Assoc. of Canada
2345 Yonge St., Suite 900
Toronto ON M4P 2E5
tel: (416)488-0030
toll free - 1-800-567-2873
fax: (416) 488-7523
e-mail: info@mdac.ca
www.mdac.ca (English)
www.acdm.ca (French)

Charcot-Marie-Tooth Quebec - newsletter (in French)
964 Dosquet
Longueuil, P.Q., J4L 3V4

Society for Muscular Dystrophy Information (SMDI) - (in English)
P.O. Box 479,
Bridgewater, N.S. Canada B4V 2X6
e-mail - smdi@auracom.com
web site: www.auracom.com/~smdi

New Zealand - in touch magazine

MDA of New Zealand
PO Box 16 238
Sandringham, Auckland
New Zealand
e-mail: director@mda.org.nz
web site: www.mda.org.nz

Australia - newsletter
Charcot-Marie-Tooth Association of Australia, Inc.
Building 51, Concord Hospital,
Concord, NSW 2139, Australia
e-mail: cmtaa@lycos.com
web site: http://www.e-bility.com/cmtaa

Belgium - newsletter
Alexander Leysen
Wijngaardstraat 25A
1755 Gooik
Belgium
email: leysen.alexander@belgacom.net

France - newsletter - in French
CMT France
M. Philippe de Maisonneuve
32, rue de la Grande Mauffinee
49240 Avrille, France
e-mail: cmt-france@crealinks.net
web site: http://crealinks.net/cmt-france/

Germany - newsletter
Deutsche Gesellschaft fur Muskelkranke (DGM),
c/o Werner Stecher, Warthestr. 32
D31582 Nienburg, Germany
e-mail: Werner.Stecher@t-online.de

Italy - newsletter/web site/ book/
Italian CMT Association (AICMT)
Ms. Paola Gargiulo
via di Baccanello 339-00064
Rome, Italy
e-mail: aicmt@libero.it

The Netherlands - contact only
Henk Dikkers
Irisstraat 49
7471 AT Goor
The Netherlands
e-mail: h.adikkers@freeler.nl

Norway - in Norwegian
web site: http://home.c2i.net/la3oia

Pakistan
Rabia Moon Memorial Institute of Neuro Sciences
e-mail: neuroscience@cyber.net.pk

South Africa - contact only - has leads to doctors and information
Hettie Woehler
woehler@potties.co.za

Switzerland - not in English
Schweiz. Ges. fur Muskelkranke
Kanzieistrasse 80
8004 Zurich
Switzerland
e-mail: sgmk@sgmk.ch
web site: www.sgmk.ch

U.K. - ComMenT - newsletter, etc.
CMT UK
Mrs. Karen Butcher/ membership
36e Melbourne Rd.
Christchurch, Dorset BH23 2HZ
e:mail: timkaren.butcher@ntlworld.com
web site: www.cmt.org.uk

CMT information on line

There are many, many web sites out there on CMT. Do some surfing and see what you can find.. We'll list more on the CMTNEWS.com web site.

American Medical Association
www.ama-assn.org/med_link/wgovern.htm

Former CMT International
www.CMTNEWS.com

Harvard University Web forum on CMT
neuro-www.mgh.harvard.edu/forum/CharcotMarieToothMenu.html

CMTnet - lists of resources
www.ultranet.com/~smith/support.html

Muscular Dystrophy Association facts about CMT
www.mdausa.org/publications/fa-cmt.html

GeneReview on GeneTests-GeneClinics site
CMT overview by Dr. Thomas Bird
www.geneclinics.org/profiles/cmt

Medline plus - National Library of Medicine - U.S.A
www.nlm.nih.gov/medlineplus/

National Institutes of Health clinical trials database
www.nih.gov/health/trials/index.htm

Genetics
Dept. of Neurology, Washington U. in St. Louis, School of Medicine - excellent site for genetics
http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html

CMT e-mail Chatlines

http://groups.yahoo.com/group/CMT-Support/
140 members and very active list. Lamar Stephenson is the moderator and the list is member driven - not a lot of rules.

http://neuromancer.mgh.harvard.edu/echat42/Charcot-Marie-Tooth/ MGH
Harvard CMT live chatroom

http://www.charcot-marie-tooth.org/site/ubb/cgi-bin/ultimatebb.cgi
CMTA bulletin board

http://communities.msn.com/CharcotMarieTooth/home.htm
A chatline run by Jeanie Porter, affiliated with the Pacific NW CMT Support Group

Centres of Excellence for CMT

McMaster University Medical Centre, Ontario
Dr. Mark Tarnopolsky, Neurologist
Dept. of Neurology
McMaster University Medical Centre, Rm. 4U4, 1200 Main St. W.
Hamilton, ON L8N 3Z5, Canada
Clinic appt. - (905)521-7933 (Dale)

VA Medical Center, Washington
Dr. Thomas Bird,Neurologist/Medical Genetics
Chief, Neurology Section (127)
VA Medical Center
1660 S. Columbian Way
Seattle, WA 98108, U.S.A.
Clinic appt: (206)764-2021 Ext. 62308

Wayne State University CMT Clinic, Michigan
Dr. Michael Shy, Neurologist
Dept. of Neurology
Wayne State University
421 East Canfield Ave.,
3124 Elliman Bldg.
Detroit MI 48201, U.S.A
Clinic appt: (313)577-8317 Karen

Shriners Hospitals - children
For a list of Shriners hospitals that take children with CMT free of charge go to www.shrinershq.org or www.shrinershospitals.com

Specific symptom information

Continence
Quality Care newsletter
National Association for Continence
PO Box 8310
Spartanburg, SC 29305-8310, U.S.A.
tel: (800) 252-3337
fax: (864) 579-7902
1-800bladder for specialists

Gastrointestinal disorders
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
PO Box 17864
Milwaukee, WI 53217, U.S.A.
e-mail: IFFGD2execpc.com
web site: www/execpc.com/iffgd

Pain
The NACPAC Track - Newsletter
The North American Chronic Pain Association of Canada (NACPAC)
60 Lorne Ave.
Dartmouth, Nova Scotia
B2Y 3E7 Canada
1-866-470-PAIN (7246)
web site: www.chronicpaincanada.org
an excellent site with links to U.S. web sites on pain plus all kinds of information.

Parenting

Parenting With A Disability Bulletin (also available on audiotape or in braille)
Centre for Independent Living in Toronto
205 Richmond St. West, Suite 605
Toronto, ON M5V 1V3
tel: (416) 599-2458
fax: (416) 599-3555
TTY: (416) 599-5077
e-mail: pdn@cilt.cnd.com

Through the Looking Glass (print)
National Resource Center for Parents with Disabilities
2198 Sixth St. Suite 100
Berkeley CA 94710-2204
tel: 510-848-1112; 800-644-2666;
fax: 510-848-4445
e-mail: tlg@lookingglass.org
web site: www.lookingglass.org

Menopause

A Friend Indeed - Newsletter
419 Graham Ave., (Main floor)
Winnipeg, MB R3C 0M3
Canada or
P.O. Box 260,
Pembina, ND 58271-0260, U.S.A.
An excellent newsletter for women

Ventilation/ breathing
see also www.CMTNEWS.com under breathing

International Ventilator Users Network - newsletter/IVUN News
Gazette International Networking Institute
4207 Lindell Blvd #110
Saint Louis, MO 63108-2915, U.S.A.
tel: (314)534-0475
e-mail: gini_intl@msn.com
web site: www.post-polio.org/ivun

Funding - equipment, etc.

Muscular Dystrophy
Family Foundation (MDFF)
2330 North Meridian St.,
Indianapolis, IN 46208-5730
Tel: (317)923-6333
1-800-544-1213
e-mail: mdff@prodigy.net
web site: www.mdff.org

Local Muscular Dystrophy Association chapters in the U.S.A. and Canada will sometimes fund equipment.
Often people find that their local service clubs will gladly help to raise money for necessary helping aids if approached.
Sometimes an article in your local newspaper will work wonders.
You have to be your own advocate and get out there to tell people what you need and then get to work to get it.

Genetic Testing

Athena Diagnostics
4 Biotech Park
377 Plantation Street,
Worcester, MA 01605, U.S.A.
tel: 1-800-394-4493
web site: www.athenadiagnostics.com