About this site

by Linda Crabtree, C.M., O.Ont., O.M.C., B.A., LL.D.
Founder of CMT International 1984-2002

CMT International was founded in 1984 as a registered Canadian charitable organization dedicated to helping people with Charcot-Marie-Tooth disease (CMT) and hereditary neuropathy with liability to pressure palsies (HNPP) better cope with their disease as they went about their lives.

During the following 18 years, more than 10,000 people in more than 40 countries received information kits on CMT; conventions were held, a Web site went up, an e-mail chatline flourished and the organization published 103 issues of the 32-page CMT Newsletter. In the year 2000 it became evident that most people looking for information on CMT and HNPP were finding CMT International through the Internet. Postage, printing and maintaining an office was costly and my health was such that I could no longer be part of things without a great deal of pain.

In 2002, it was decided that CMT International would cease as an entity and information from the many back issues of the CMT Newsletter, much of it written by experts on the disease, be put on this Web site for everyone, everywhere, free of charge.

This Web site will be updated as new information becomes known. See also the
Resources/Web sites category on this site for other CMT Web sites.

The information here is just that, information. It is provided with the best intentions but it is up to you to seek out a doctor who knows CMT or is willing to educate him/herself on the topic and discuss your own personal symptoms and treatment with him or her. We cannot assume responsibility for your health, your treatment, or what you do with the information supplied in this Web site. We just hope the knowledge gleaned by CMT International through you, the people who have CMT and the professionals who care for us, will help you in your search to better cope with your CMT or HNPP.

All of the information on this site is protected by copyright. However it may be used elsewhere if the authors' bylines, where applicable, go with the items, and credit is given to WWW.CMTNEWS.com.

After 18 years of answering your questions, I can no longer be on call all the time due to severe CMT and neuropathic pain but you may ask a question through this Web site and I'll do my best by asking our advisors to the site. Please try to find your answer first on this Web site or go to some of the other Web sites listed here or join one of the many CMT chat lines for your answers but if you come up dry, ask away!

If you have something you feel should be added to cmtnews.com please get in touch with me at linda@lindacrabtree.com.You might also like to visit my personal Web site at www.lindacrabtree.com. If my personal site isn't up, please know I'm working on it.